Thank you for all your prayers. It was definitely an adventure in Omaha. The Children’s Hospital was amazing and made me very thankful for the health of my children. Everyone was very friendly and professional.Isaac’s EEG went well but he didn’t like the tape removal at the end. The technician was very good and is a member of the LCMS - which Adam spoke with her about. I was very thankful that we had a knowledgeable and caring technician.I am also thankful that my parents were there because Rachel loved playing with them in Kids Camp.The specialist appointment was good. She has 30 years’ experience with children. She made sure you had all the information you needed. She was gentle and kind. She said his EEG looked like a normal 6 week old baby's, however she is going to have a partner look over the results too. They always double check.
She said that since she didn’t see any abnormalities that he probably doesn’t have seizures at this time. She did understand why we were concerned because of the family history. She diagnosed him with startle myoclonus. “Startle is a stereotypical response to a sudden and unexpected stimulus. In most instances, the stimulus is acoustic, but other modalities such as tactile, visual, or vestibular are also effective stimuli. The motor component of startle satisfies the criteria for myoclonus. Exaggerated startle, is a feature of various neurologic and psychiatric conditions.” Which in our terms overactive startler.
He will grow out of it by 6 months. She also told us numerous times if we had any concerns to call the office.